little girl with rare disease

Welcome to Rare Village!

Welcome to our village. We’re so glad you’re here!

Kasey and I started the Rare Village to help families find their path through the rare disease journey. We both know how challenging and chaotic that first year of diagnosis can be, and we wanted to make the path to finding, funding and achieving treatments for rare kids faster and easier. Please reach out if we can help. 

No one needs to be an rare disease advocate alone – after all, you do have a village.