One Shot to Live

The One Shot to Live Documentary Series & The Rare Village Blog


One Shot to Live

Single-gene therapy may be the greatest hope for thousands of children with rare diseases. But the greatest challenge is time, or the lack of it. In an increasingly faster-paced world, the parents of these three children fight to save lives all while seeing the life around them through an entirely new lens; a lens that lets them live each day to the fullest.

One Shot to Live is a documentary series created by the Rare Village, to tell the stories of the journey to creating a treatment while raising a family confronting a terminal childhood diagnosis.