Why I became a teenage rare disease advocate My name is Aubrey, I am a senior in high school, and I am a rare disease advocate.  Anyone can be an advocate, but we all have different reasons why we feel called to help rare families and the treatments they are fighting for – this is …

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Welcome to our village. We’re so glad you’re here! Kasey and I started the Rare Village to help families find their path through the rare disease journey. We both know how challenging and chaotic that first year of diagnosis can be, and we wanted to make the path to finding, funding and achieving treatments for …

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