One Shot to Live
The One Shot to Live Documentary Series & The Rare Village Blog
One Shot to Live
Single-gene therapy may be the greatest hope for thousands of children with rare diseases. But the greatest challenge is time, or the lack of it. In an increasingly faster-paced world, the parents of these three children fight to save lives all while seeing the life around them through an entirely new lens; a lens that lets them live each day to the fullest.
One Shot to Live is a documentary series created by the Rare Village, to tell the stories of the journey to creating a treatment while raising a family confronting a terminal childhood diagnosis.
Blog
One Shot To Live
One Shot to Live The One Shot to Live Documentary Series & The Rare Village Blog One Shot to Live Single-gene therapy may be the
Double the Donation
Match your Donation Did you know that thousands of companies match donations made by their employees to organizations like ours? See if your company will
Our Village
Our Village Because it really does take a village to save a rare child – you can help. Support Our Cause The funds of Rare
About Us
About Us Founded by two rare disease moms who saw the potential for a better way, the Rare Village is focused on serving rare families
Contact
Together we can make a difference. Together we can make a difference in the lives of children with rare diseases. Contact us today to start