Become a Visionary
Are you an industry ally who cares about Rare?
Become a visionary and help rare families.
Impact of Partners
Fund essential storytelling resources — including professional videography, photography, and more — to help families share their journeys and inspire action.
Help take family-led funds across the finish line by funding the clinical trials they’ve already worked tirelessly to prepare.
Build momentum by helping Rare Village grow its portfolio of distinguished philanthropists committed to uplifting families affected by rare and ultra-rare genetic disorders.
Fueling a Movement. Funding a Cure.
Rare Village Foundation is a nonprofit on a mission to transform the future of rare disease treatment by empowering the families who are leading the way. We support families affected by rare and ultra-rare genetic disorders as they take on the extraordinary challenge of funding their own therapeutic research. With the right tools, resources, and community, these families are not just advocating — they are advancing science.
We invite visionary partners to join us in growing this urgent movement. Your support helps build the infrastructure required to bring family-led funds across the finish line — into clinical trials, drug development, and ultimately, real treatments. Together, we can accelerate progress and bring hope to families who can’t afford to wait.
Benefits of Partnership
Direct Impact on Drug Development
Your support accelerates real-world progress. By funding Rare Village Foundation, you help take family-led research efforts from promising science to fully-funded clinical trials — fast-tracking potential therapies for children with rare and ultra-rare diseases.
Legacy Through Empowerment
Become part of a transformative movement. As a Rare Visionary, you’re not just funding research — you’re empowering families to lead the charge in therapeutic discovery. Your investment creates a legacy of hope, agency, and change in a space where time is critical.
Be a Catalyst for Innovation
Rare Village is building the infrastructure to simplify and scale family-led research. Your donation helps fund toolkits, expert guidance, and storytelling support that amplify family voices and open doors to more efficient, community-driven drug development pathways.
How Partners Shape the Rare Community
Access to rare families for surveys and focus groups, playbooks and roadmaps, direct engagement with the rare community.
Building a Sustainable Research Ecosystem
Your support strengthens the infrastructure that makes family-led research possible, ensuring that families have ongoing access to essential resources, expert guidance, and networking opportunities for long-term success.
Raising Awareness and Creating a Movement
Rare Visionaries play a vital role in amplifying the voices of families and increasing awareness of rare diseases, fostering a larger community of support that drives further innovation, research, and policy changes.
Accelerating Clinical Trials
By providing critical funding, Rare Visionaries help bring family-driven research to clinical trials faster, giving children with rare diseases access to potentially life-saving treatments sooner.
Empowering Families as Change Makers
Rare Visionaries help equip families with the tools, resources, and education they need to advocate for their children, turning them into powerful agents of change within the rare disease space.
Why partner with us?
Becoming a Rare Visionary means you’re directly impacting the lives of children and families battling rare and ultra-rare diseases. Your support accelerates groundbreaking research, empowers families to lead change, and helps bring critical therapies to clinical trials faster. As a Rare Visionary, you’re not just funding science; you’re shaping the future of rare disease treatment and creating a lasting legacy of hope.
Become a Partner
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"Build a better world together"
At Rare Village, we’re building a better world together — one where families, researchers, and philanthropists join forces to drive progress in rare disease treatment. We’ve walked the difficult path ourselves: raising funds, connecting with scientists, and witnessing our children’s health decline. We understand the profound pain and incredible resilience of rare families because we’ve lived it. That’s why we know the strength in community… because rare families trust each other like no one else can. Together, we’re building a future where no family faces this journey alone, and where hope is turned into action.
